tag:blogger.com,1999:blog-4978933527088403678.post770876986243369256..comments2011-03-22T20:36:11.974-04:00Comments on Juliana's Journey: Going to BostonMom2Julianahttp://www.blogger.com/profile/05041363720531474125noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-4978933527088403678.post-4981767262700810402008-10-23T21:58:00.000-04:002008-10-23T21:58:00.000-04:00I'm sorry to hear this news. My daughter Kinnick ...I'm sorry to hear this news. My daughter Kinnick had a lot of gut issues, too. Her liver was in terrible shape. It was really large. I thought it would never go back down. While in a NICU hospital 15 hrs from my home, the head guy noticed her enlarged liver and suggested increasing the dose of her seizure medicine. He said that it would actually help her liver - side effect or something. Anyway, her liver improved and went down to normal size within a couple of weeks of increasing the dose and her number went back to normal - no more orange kiddo. I don't know if your is the same issue, but thought I might mention this.<BR/><BR/>Best wishes,<BR/>Shanon Woolley<BR/>kinnickandcarver.blogspot.com23 weekershttps://www.blogger.com/profile/05540906877690044733noreply@blogger.comtag:blogger.com,1999:blog-4978933527088403678.post-29201223456837685062008-10-22T09:33:00.000-04:002008-10-22T09:33:00.000-04:00Hi,I found your blog while googling Omegaven. My ...Hi,<BR/>I found your blog while googling Omegaven. My daughter Ellie was the 23rd baby to go on Omegaven and we think it saved her life. Congratulations on going to Boston. The doctors there are great. <BR/><BR/>Ellie is 2 and a half right now and is pretty much a normal wild child. Your daughter is beautiful and such a fighter. These kids are amazing, they make us all look like wimps. <BR/><BR/>I hope you have a safe trip and if you need to talk to some one who has done this trip before, feel free to email me.<BR/><BR/>Abby Brogan<BR/>Mom to Ellie.<BR/>eleanorbrogan.blogspot.comGib and Abby Broganhttps://www.blogger.com/profile/06179363281707963164noreply@blogger.com