Tuesday, April 28, 2009

Not getting any worse....

So the good news of the day is that Juliana is not getting any worse. The swelling is getting better but she still has a lot more peeing to do. She is off the high blood pressure meds and is now on Dopamine for low blood pressure. She is oozing out a lot of blood from her cannula site and there is not much to do about that. The only thing we can do is to keep replacing the lost blood with more packed red blood cells. To date we have 48 hours with no growth from the blood cultures. This doesn't necessarily mean that the bacteria is gone but it is at least surpressed by the antibiotics. Her pulomonogist came by today and heard a couple of deep breath sounds. She is still no where near ready to come off the machine but breath sounds means that we may be on our way to healing now. I just hope that she can stay on the machine long enough to heal before her brain starts to bleed.

I am happy with her progress but there are still many concerns. The blood loss really worries me but I know that she won't bleed to death because we are able to just replace whatever blood she has lost. Unfortunately she can't be moved and has to lay in the pool of blood that is forming underneath her. The nurses and I are doing everything we can to keep her clean without moving her but it is very hard.

She has a great team of doctors attending her right now but it is very difficult to keep a close eye on her when they are 7th floor and we are on the 4th floor. Hopefully her lungs will make a speedy recovery and we can get off the ECMO within the next week and back to the 7th floor. Nights have been hard without her home. I still wake up in the middle of the night to check on her and she is not there. At least when we go back to the PICU I can stay with her at the hospital.


  1. I'm happy to hear that she's making progress. I just want you to know that my prayers are still with you, Juliana, your family, and the Doctors.

  2. How's Juliana doing ? Hope all is well..


Juliana Maria was born on July 12, 2008. She is a micro preemie born at 1lb 2oz. 11-1/2 in 23 weeks and 4 days gestational age.