Wednesday, October 15, 2008
In four weeks the surgeons are planning to reverse Juliana's ostomies and reconnect her intestines. Of course we will have to start from the ground up again on feeds and she may still have some other lung issues to deal, but I am hoping to have her home by Christmas. She has been doing very well over the past week. She remains on NIPPV and seems very comfortable with it. There haven't been many changes on her vent settings which is fine. She is loving the crib life and surprisingly can sleep very well with all the noise in the room. I was concerned she would not be able to adjust to all the noises that she didn't hear while in the isolette, but she is just fine. I still have not really heard her voice yet as she is still quite hoarse from all the weeks of intubation. Her feeds have been great and we are now seeing stool from her colostomy bag and her rectum. Her eye exam went very well yesterday and her condition is improving. She is doing everything she is supposed to do at this point. We just have to wait four weeks for surgery and take it from there. I am so proud of her.
Juliana Maria was born on July 12, 2008. She is a micro preemie born at 1lb 2oz. 11-1/2 in 23 weeks and 4 days gestational age.