Juliana made it to Boston and is getting to know everyone. Well actually they are getting to know her. You could tell she knew she was not at the same hospital. She had a little fit when she woke up from her sedation, but was able to settle down and fall back to sleep after I swaddled her. She will start on the Omegaven on Friday, so for now she remains on the TPN with regular soybean oil lipids. It's been a hard week for me as I haven't seen her in 2 days and won't see her til tomorrow night.
The nurses have been great. They seem to really listen when I talk to them about Juliana and her care and medical treatment. After three months of life Juliana has developed some real likes and dislikes. She responds well to some treatments and not so well to others, so it's important to make everyone aware of what works and doesn't work with her. The doctors still haven't made any real decision regarding her ostomies and reanostomosis as they are still getting to know her also. Hopefully within the next week we will have a plan in place. Please continue to pray for Juliana and her recovery.