Juliana is doing very well. She has been trying to self extubate herself this week. It seems though that she might be ready soon. So for now we have to wrap her little hands up tight so that she will not pull her tube out. We have been able to wean her settings qite a bit this weekend and are working towards presure support only which means that the machine will not have a breath rate set. If she can do well with this then she may be able to move on to CPAP. Her last blood gas was the best we have seen in quite a while. Her CO2 was 55 down from high 60's and low 70's. Everyone was so excited to see this. I think this has a lot to do with decrease in her lasix (diuretic) dosage she is getting. I was quite worried at first because her support had actually gone up for a while but the doctors reduced her total fluids and are getting her nutrition under control. I am very happy about her progress.
Sorry there have not been many pictures lately but I have plans to post some on Monday. We have tons to choose from just not very much time to get them in the computer and online.