She also has a pulmonolgy visit next month but I am hoping that we can make it sooner. I have been testing her by turning the oxygen off for a little while to see how she does. At this very moment she has been off the oxygen for almost thirty minutes and hasn't dropped below 95%. When I first turned it off she was sleeping. About five minutes ago she woke up and her saturation level hasn't dropped below 97%. I am very hopeful that we can get her off the oxygen very soon. I know that with her off oxygen that her surgeon will also be ready to go in and put her back together. This is something I am looking forward to but at the same time I am afraid to put her through surgery again. Life with Juliana is unpredictable and I don't know that everything will go according to plan with this surgery. All I can do right now is enjoy the time we do have together and hope that all will go well.
Here is Juliana in her swing and big brother, Omar, on binky patrol.
Daddy and Juliana cuddling on the couch for the first time on the day she came home from the hospital. I love her homecoming dress.
Hanging out with Mommy
Juliana's favorite activity.... starring at her hands.